A few years ago our beloved Nirvana Diaz, granddaughter of Joe & Ro Lovallo, was born and diagnosed with SMA*.  Not long after we became educated on the lack of affordable treatments for this disorder.  We are raising money for the SMA foundation whose mission “is to accelerate the development of treatments for Spinal Muscular Atrophy. SMA is the leading genetic cause of death in young children.”

* Spinal Muscular Atrophy is a rare neuromuscular disorder and is a genetic disorder that starts in the central nervous system (CNS) and affects all the muscles in the body. Due to the degenerative nature of the disease, people with SMA will experience a decline in muscle strength over time, although the rate and severity can vary among individuals.